We are home and hoping it was just a one off

So it was a traumatic day. Of course, days in the ER usually are. Holding and coercing for everything. luckily, the nurse who did the IV took my tips did it down further they are instead of at the fold, which allowed it to work a little better than it would've. Also, she was good and got it on the first stick which is rare. The guy doing the x-rays was quite a bumbler and definitely hasn't worked with kids. He kind of frustrated me but oh well. when I felt Ian was about to throw up him and his assistant were scrambling around to find some thing and I was just asking them insistently and politely, if I could just have a towel or something. They walked away for like three minutes while he was puking everywhere, and the guy came back with a bucket. of course handy but a little too late. All I needed was a towel or a blanket which is Assistant got me from the cabinet behind us. we proceeded to do the x-rays. And all. And the guy was so much like a ball of China closet. Just shoving the thing behind Ian and lifting and prodding and pushing him around without even saying anything anything. I was trending, narrate the whole thing as best I could. But Ian wasn't having it. So I had to really work on calming him down to hold him still for the x-rays. I would be pissed if I was him too. But at least they got what they needed. we went back to the room and moments later it was time for the CT. We talked with the nurse about giving him Ativan, which he's never had before and I called An emailed his cardiologist to see if it was OK if we gave them. But the nurse said let's just bring it with us and we can put it in the IV if we need to. That was a good call. the CT were way more on top of it. We were able to coarse and talk and hold and calm him so they got the CT. Then back to the room. He did have another weird few moments while my friend Tina was there. It sure look like weird seizure activity to me and Tina thought so too but it wasn't quite exact. And then he kind of passed out a little bit. And of course that's when they came to do the EEG. After it happened. Once he started sticking the lead to his head, and he was getting agitated, that was a good time that the narrow doc came in to talk to me. Luckily, Tina came back from getting her results from her son had been there the week before. And she was able to distract him while they were sticking the leads to his head with the temporary concrete. I thought if you're gonna do this, why not do a longer one because clearly he's not having any seizure activity now. But they said they were different lead for longer one and they were only ordered to do a 20 minute. So we turned off the lights and tried to come down a little bit so at least they could get some activity instead of his super friendly connection with the EEG tech who is really nice. they left and then we hung out. Turns out he had a fever of 101 nine. After he had his episode. Which is weird out of nowhere comes a fever. But then soon after he was back to baseline. We hung out for quite a few hours, he was happy to just be in bed and looking at his iPad. then he started squirming around and I knew he had to go to the bathroom but he wouldn't tell me that he needed to. So I got him up and let him to the bathroom. Where he ended up paying Oliver his pants. So there we were, I asked for robe he had puked all over his shirt. He peed all over his underwear pants, but the nurse said, waited outside the bathroom for us, and she got us a rope. He was still happy so it was fine. It was just tricky to navigate taking the lead off his chest while holding his dirty pants and trying not to get everything falling on the ground. back to the room and he was OK. We waited there for quite a while. By the time she came back with some med to hopefully bring his fever down his fever had already dropped quite a bit by at least at one and a half degrees. She did the med, and it dropped more. Afterwards she came back later. Said she had to do some cultures. She had about 15 syringes and proceeded to go at his IV sucking blood out into all these syringes. By the eighth one I said I think you have enough. He was clearly feeling it responding into it and I was trying to keep him happy. and I asked her about it and she said because I had told the previous nurse that he had so many scars in his veins that she had use a small IV which is great until they try and draw too much blood and then it hurts. She was a great nurse though. she stopped at the ninth. his fever dropped and he became back to pretty close to baseline. And then he just enjoyed all the people coming in and out. They came into and do another chest x-ray in the room. I questioned it because they had just done two of his head, one of his chest, one of his abdomen, but the tech said that she had an order for a chest x-ray in case of pneumonia so she needed to do it. And I said OK. He's had so much radiation from x-rays over the years. I try and get them to cover all the parts. This time I asked if he could have something for his thyroid. but she said it would interfere with the chest x-ray. I was too tired and I just let it go. we hung out for a couple more hours. The narrow team gathered outside, and I could tell that they were discussing him working out what they were going to say to me and they came in about a half an hour later. It looks like it could've been seizure activity, they said, it could've been from the fall. It could be because he has yet. So we're gonna let you go home. Give them some antibiotics for the sinus and see how it goes. And I was like OK I just wanna get out of here now that he's stable. I already talked to Dr. Just at CHLA, who used to be at UCLA but moved to CHLA and that's where we see her now. her assistant said to watch him over the weekend and she gave me the protocol to follow in case he goes again into seizure and also all the numbers to call to get in touch with the on-call neurology team if we need to. A while later, the new ER attending came in went over everything and said they were going to do the paperwork. Which was fine I was ready to go. My husband was driving up from Irvine and we would just wait for him. The nurse asked if we wanted to wait in the room or in the waiting room or outside. I said outside please. but then I realize he had no clothes. He had peed on his pants and underwear. He came in with no shoes, and he had puked on a shirt. So I asked if we could take the gown and she said she could order us some sweats and shoes. I guess they do those for the homeless people to come in. So with that a half an hour later, have a pair of sweats a T-shirt, and some slides came in. She took his IV out. Which he fussed over but we got through it. And then I was trying to get him dressed and noticed blood everywhere. clearly we didn't hold the spot for the IV long enough. So I had it and I press the call button. They were clearly busy but a few minutes later she came in and she re-wrapped it. Luckily, I hadn't put the clothes on yet so they were blood free. but the bed and the gown look like a murder scene. I don't know how I avoided it on my fabulous sweater, but I did. I slipped the sweats on him the T-shirt I had brought one of his favorite sweatshirts from Santa Cruz, thanks, grandma and grandpa! and then we walked out. We walked to the halls of the ER filth with adults, clearly having issues and not getting a room. I felt so bad when we got wheeled in from the ambulance straight into her room and all these people waited in the hallway. Many of the people we had seen at eight in the morning was still there at 4:30. And then we walked through the waiting room which was filled to the brim with people. I was just thinking goodness we both had a mask on. Ian kept pulling his down his nose and I was insistent that he put a back up. we walked to the cafeteria. He carried one bag and carried another. He got a slice of pizza and I got a breedable. We went outside to the patio out there. Sponsored by our friend/acquaintance Tony Pritzker. I have to remind myself to send him a message and thanks. I always do whenever I hang out there cause it's such a lovely spot for sick people and their families. We hung out took our mask off and had a snack. And then Mike came and got us which was really lovely. We drove home in the parking lot of traffic, which is the 405. and now I will stay by his side as much as possible to make sure it doesn't happen again. We went to the pharmacy to pick up the antibiotic and the rescue med. But the rescue med wasn't covered by insurance because they needed a preop. And probably because there's no history of recent seizures, they were a little confused about why they should cover this rescue med. $2500 out-of-pocket I was not up for that. My friend said that she has some if we need it. She lives down the street thank goodness! And there we are. Another traumatic ER stay. I'm too old for this! I don't know how I did so many when he was younger, but I'm telling you it hits me different. And I'm sure it had him different now as well. I think he'll remember this one and hopefully he doesn't remember the other ones that he had when he was smaller. sad. He's doing so well relative to him. Hopefully this isn't the start of a new chapter of a medical diagnosis.