I'm pumping and tired so I won't be too detailed. In summary, we arrived at around 3:45am and we didn't get moved up to a room until aprox 9:45pm. 18 hours in a small room with a small gurney to lay Ian on. I kept the lights low because light seemed to bother him. Every noise, even a quick hand movement, made him jump he was so sensitive. Residents that try to be nice but are patronizing, making me feel like I'm an over reactive mother and really have no need to be there. Tons of doctors, nurse, residents, etc. coming in and out. It's just a mad house and miserable.
My fabulous neighbor Glenda was with me. Mike had taken Lila to the Queen Mary to stay the night because she was sick and couldn't be around Ian. We either locked ourselves in his room or had Lila have a sleep-over with Grandma. We tried the former for a day and it was not so successful. Even with Mike there, Lila would open the door to ask me for a Kleenex, slide little (germ filled ;-) sweet cards under the door for Ian and I, etc. Not so fun telling Lila she can't see me or her brother while she's sliding germ filled cards under the door for us both.
No time to ever finish a blog entry. I'm finishing this on Monday after being in from Tuesday early morning until Friday night.
He ended up being fine overall. The fever went away after Wed night. Had some fluid on his lungs again. Dr. Pornchi figures that his lungs are just so damaged that they can't hold their fluid and that's why it keeps happening. All his many cultures came back negative. Of course the results don't come back until he's been pumped with so many antibiotics I can't keep track of them all. They kept him on one going home just in case the fluid was the beginnings of pneumonia. It's so sad. With Lila I gave her antibiotics in only extreme cases, I believe only once in the first 2 1/2 years. With Ian, he's had more than Mike, Lila and myself combined in our lifetime I'm sure.
The experience was grating, as usual. The nurses are all very nice but it's the fact that his blood is being drawn, his IV came out again so another 2 pokes before it was in again. When they flush it, it's very uncomfortable for him, and that happens before and after any drug is administered.
It's so unnerving bringing him in there. What they tell me is that a boy with his past has no reserves like most kids. He's been so sick for so long relative to his short life. I'll tell you, we will do anything we possibly can to not bring him back into the ER again. I just hope the time that I'm second guessing it isn't the time he really needs to go but, we'll deal with that as it comes.
But I'll tell you, having to hold down your screaming baby while someone is sticking them with a needle takes years off of your life. And I've had to do it countless times.
Hugs
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