Sunday, March 24, 2024

Home again with hope for no call in the next 24 hours

well, we are home again, thank goodness! It was a rough few days. But I've endured much worse so has he. But the older I get, I don't know how I did three weeks or more at a time. For now the bacteria they found in his blood was a mouth bacteria I have no idea how helicopter because he hasn't done any dental work recently. But that's OK. The doctor let us go with a caveat that if he calls us within the next 24 hours hours we will come right back. I guess it takes a while for everything to grow to its full potential for detail. very happy to be home, because not only did I get no sleep last night and I'm too old for this, but the nurse today was not the best fit. The Nurse last night was awesome! As was the care partner. But clearly the care partner was New because she kept doing blood pressures even though there was no way she was going to get a good one because she was too fussy and it was midnight and 4 AM. but that's OK. At least she was kind. That's the most important thing. We will just have to watch for seizures. We don't know why it happened, but I have been preparing for this moment for many years. And thank goodness they didn't happen when he was an infant, regularly. that's what Seth's kids back. He made it to 14 which I'm very happy with. I was always very careful to say that he didn't have seizures yet. I didn't want to jinx us. But I knew it was probably inevitable, although I kept hoping it wasn't. there's a lot of MCM kids who, if they don't start when they're little, start when their teens. And here we are at 14 he made it this long and I'm thankful for that.

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