This is a post I did for the M-cm group on Facebook.
PIQRAY is an amazing medication for our kids! Ian has been on it since December and within a month of being on it, his aortic dilation started shrinking. Now he's been on for 5 months and the portion the docs were super concerned about is almost normal! The other portions have slowed as well and hopefully he will grow and they will stay the course. And, there is no sign at all of Pulmonary Hypertension!
Another M-cm family has had their daughter on it for been on it for 8 days and her blood sugar has stabalized dramatically. From having 5-8 low blood sugars a day to having only 2 over the 8 days! This could have changed so much for my son when he was little. We have had so many issues which this med could have helped. Including what this other little girl is going through. I would highly recommend checking it out with your docs. If you have any questions, please contact me, 310-699-7621.
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