New blood sugar issue

It really sucks having a low verbal child when they are sick. It’s like having a baby for their whole life. Like those days as a new parent when your baby is  screaming. You feed him, change his diaper, make sure he gets enough sleep. And still he cries. From then on it’s a mystery you try to solve with the Pediatrictian or your mom friends or your family. Imagine doing that for 8 years :(

This has been a really strange week. Very stressful. It started Saturday when we attended a MNO (my special needs parents group) Easter Celebration. It was at a lovey park and such a great event. But while we were there, Ian was hanging by the food table and had way too many pastries and cookies. While I was watching him he had a few and should have stopped there. But then I left the park for a bit and Lila and a friend, who has a complex child of her own, were watching over him and he snuck a bunch more treats. I left to grab Easter tattoos and change into the Easter Bunny costume because our regular bunny was out of town. It was such a good time. All the kids loved it, especially Ian which was awesome!

All seemed ok that night. The next day, as you can imagine, he had lots of visits to the bathroom for BM’s which of  course he loved because we were laughing each time and he was rewarded with his favorite device. Later that day when it was time for dinner he was laying down on his bed and didn’t had to be coaxed out for dinner, which sometimes happens because he’s not a huge dinner guy these days. It was the next day that things started going awry.

First, he slept until 10:30, which is unheard  of for him.  He kept asking to go poop and pee on the toilet. Because he’s so obsessed ugh the iPad I assumed it was that. And of course because we are finally “toilet train in” I try to be very responsive to those requests. He would go pee a little bit each time so he would get the iPad for 5 minutes.  It then I started wondering if he was finally getting good enough to control it so he could go all day ;) He was then fussy a lot of the day when he didn’t have the iPad. I assumed it was a behavior thing. We tried to go out for an “adventure “ as he calls it when I say we are going to go somewhere.

Originally we had a plan to go to the Aquarium but he was so out of it and fussy while I was driving that I reconsidered and tried to just go to a Pinkberry where there usually is a small splash pad which he loves. Unfortunately it wasn’t running so I just got him a cone, his favorite part of frozen yogurt, and we went for a short walk. We were also joined by one of his behaviorists so she was trying to help as well. He kept pulling on the sleeve of my sweater saying “mommy’s car” which is what he says when he wants to go. We walked for a bit and he took a couple bites of chocolate yogurt and walked into a store to check it out and say hi to the ladies working. He seemed better but still off so we headed home. He still kept asking to go to the bathroom.

On the way home he was super fussy and was yawning a lot. As I’m typing this I’m realizing he’s been acting more “yawny” before this but not extremely. His speech therapist and I thought he’d figured how to make himself yawn. Who knows if it’s connected.

When home and he was able to pee and got the iPad he seemed fine. I started getting very confused. Lila did mention to me when she’s sick she can distract herself with something and feel better temporarily. When he was happy with the device he would eat a little something but when off it wouldn’t touch food. But he kept asking to go to the bathroom.  I started thinking maybe it was a bladder infection.

That night, he remained fussy with no iPad and eventually fell asleep on the couch. Which is really out of character. Lila was so sweet. She offered to sleep on the floor next to him. She pulled out a pad and some blankets. I offered but she was excited to do it. But he woke a bit while we were talking and eventually I was able to help  him to bed. He woke once in the night to go pee, which he’s done each night since.

Next morning my MIL was here early and he got up and was hanging out with her, acting pretty normal it seemed. I believe he had eaten some things, like a banana and some cereal. I thought we were back to “normal”. I had even worked with him to help me make banana waffles, which he ate plenty off when done. At this point he hadn’t had a BM since midday Sunday, which is not typical for him, but I thought it was his treat overload Saturday.

I had planned to take the kids to a farm excursion but he was a bit fussy later in the morning so wasn’t sure. But decided to go for it by noonish. In the car, again he was tired and fussy when no device, but with a device he was fine. It was a long drive and he had just peed in the toilet so  he had the device for most of the long drive. When we arrived he was a bit fussy but not horrible. And we mostly had a great time exploring the farm and petting/feeding the animals. Seemed back to normal. We tried to use the bathrooms but they were ports potties so was tricky but after many requests and a lot of exploring them he finally did pee. The way home was the same. Tilted over at a 45 degree angle, fussy and yawning when no device. Seemingly  fine when he had one. Very strange behavior.

When we arrived home, he was pretty out of it. He fell asleep on my bed by 6:30. I carried him to his bed and he wanted me to read a bit but was out before I finished one book.

Next morning was supposed to be an outing with the school that we get our Developmental Interventionosts from. They were going to the Aquarium so I woke the kids up by 8:00 and all seemed pretty good. Since he wasn’t eating much but I knew he liked the banana waffles I made more and he ate 3/4 of one.