Notes on time in ER/Admission from 1st low blood sugar incident on 8/29

I had posted on FB about this experience. I was looking for shared experiences, which I received. What a scary incident. To save time, I will just post what I posted there below. This happened Thursday, the 29th of August.
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I'm in the ER with Ian. He was lethargic and super sweaty and clammy this morning. As well as drinking tons of water, which now know I shouldn't have given him. When they finally were able to get blood his blood sugar was 23. Temp was down to 94. After the 4th attempt, they were finally able to get an IV started with sucrose and his sugar raised to 155. With a warming pad and hot blankets his temp is now 96. No other symptoms.

They did a CT and his shunt seemed ok. His ventricles are normal. Just did chest and head x-rays but he hasn't been sick. He was fine yesterday.

He continues to sleep not reacting to me. When she did the last rectal temp he opened his eyes but did not look at me.

Only variables I can come up with is we were at CHLA yesterday for a foot doc appt. I thought maybe he picked up something there but they said it wouldn't happen that quickly. Also started a new bottle of Enalapril last night but unless that was another major wrong drug that shouldn't have this affect.

Looking for shared experiences so we can figure out what is wrong with him. They did a CT and his shunt seemed ok. His ventricles are normal. Just did chest and head x-rays but he hasn't been sick. He was fine yesterday. He continues to sleep not reacting to me. When she did the last rectal temp he opened his eyes but did not look at me.
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The whole experience was quite surreal. I took him to the doctor after he fell asleep on his floor twice and then in the crib, as I was getting Lila ready to go to school. Luckily our neighbor was on his way out with his children who also attend WISH so I was able to go straight to the doc. As soon as she saw him, she told me to take him to the ER right away and called ahead for me.They were waiting for me at the door and brought him directly into a room. There were so many people buzzing around the room but nothing was getting done. Very strange. They did his vitals with his clothes off and afterwards I had to ask for a warm blanket to try to warm him up. His temp was just under 94! I explained how the IV attempts usually go and asked to have the expert with tricky children get it going but they did it exactly how I described anyway. First and second attempt by one nurse who couldn't get it. The second nurse couldn't get it but was able to get the blood they needed. Which they tested immediately and found his blood sugar was 23. I insisted they get someone down from the NICU to do the final attempt, but the person we were looking for was on break. So finally the ER attending got it in his neck. The very scary thing was he was barely reacting to these pokes and digs into his arm. Usually I have to lay on him and there's 2 others helping. Can you imagine my shock over this? For the final one in his neck he reacted the most but I easily held him on my own.

As soon as they found the blood sugar to be so low I was asking for some juice and a sponge to get it in his mouth but no one brought it. It's like they were all so flustered! Finally a large male nurse with a heavy accent and clearly lots of experience barged in with the sucrose. People were talking to him but he was ignoring them, speaking to me only. While he hooked it up to the IV, he was asking me to feel the back of his neck sweaty and cold. He said it would be normal feeling in just a couple minutes. And he was right. Within a few minutes he was no longer cold or sweating more. After a short time he tested his BS again and he was up to 155. Amazing! Had I just known what was happening at home I could have given him some juice and avoided this whole thing. 

But even at 155, he was not waking up. I asked him what happens if this doesn't kill a child. He explained it could start shutting down the body and affects the brain first, then the organs. I silently lost it. Thoughts of what might be happening in that beautiful brain of his started rushing through my head. What would he be like when he woke up. Would we loose all the progress we were making. Would we be starting from birth again. For 4 hours I kissed his face and told him how much I loved him, singing his favorite ABC song and stroking his hair over and over. 

After an hour or so, I can't really remember, I thought of calling our favorite Osteopath, Dr. Gill. She wasn't in the office but I told her office assistant what was happening and she said she'd get her the message. I thought if there's been any damage done, maybe she can direct me to do something to slow the damage. Who knows. I was grasping at straws at this point. 

The ER team wanted to transfer him to SM UCLA. They figured he was stable at this point and, as usual, there were no rooms upstairs on the pediatric floor. They let me have time to decide. Mike was out of town but trying to get a flight back as quickly as possible. I called Dr. Woo, our pediatrician, for advice. My gut was telling me to keep him where he was in case he needed additional care when he woke up. (My thoughts of transfers are not so favorable. I still feel his brain bleeds were caused by the ambulance ride from SM to Westwood when he was an infant.) She agreed we keep him put until he wakes up and we can access him. 

Eventually, the attending from the PICU came down to talk to me about moving him up there. While we were discussing what to do, Ian miraculously woke up! It was amazing, like a dream. They had brought food for us and it was on the counter. He immediately pointed to it and started whining. I almost dived over to it to give him a bite. Saying "momm" for more and gobbling every bite, he seemed back to his old self! The doctor was astonished. He saw the tears streaming down my face and confirmed with me they were happy ones, of course. A nurse came in and was so excited as well. After he had consumed the whole meal and was wanting more, I agreed to the transfer. 

Every person coming into the room was so excited to see this happy little guy gobbling up his food. Eventually I had to stop feeding him so adverted his attention to Barney on my iPad. (I tried with books and toys to no avail). Thank goodness I had my iPad with me and was able to download his favorite ABC Barney we had at home. By the time it began playing he was bouncing and giggling, shaking the whole bed! There were so many smiles entering that room, one by one they were sending each other in to see him. It was a remarkable time.

From there, we set up the transfer. Didn't happen until 10pm that night and by that time he had watched Barney about 4 times I think. It was the only thing that would keep his mind off of food and he was so super stuffed at that point. His typical inability to become satiated must have been set to an extreme level due to the drop in sugar.

When I grabbed my phone to leave a message for Mike, I saw I had missed a call. Just about the exact time Ian woke up, our angel Dr. Gill had left a message. No one can explain what happened or why. Still. They are running more tests now. But I really believe she had something to do with the outcome. She is just one of the many angels watching over my sweet boy. The one with the most amazing energy that he responds to. The connection is clear.