Anyway, he feels he can help Ian with many issues. He feels his nervous system is really off because of his pre and post birth experiences.
But he's quite expensive. As all of these alternative doctors are. He's actually top on that list. Who knows if he's the one to really help Ian. What we are all looking for (Mommies of special needs children) and I told him directly this, is someone to help our child to become "typical" developing. That's all. Not too much to ask, right? ;-)
I actually corresponded with a friend who's child HAD autism. The all cap HAD is the key here. I've known this boy for probably about 5 years. They are in our neighborhood and we are all part of the MOMs Club. I'm dying to hang out with them and see how he's doing. She shared with me they started seeing a doc in SM who put him on hormone therapy and now her son is developing typically! I freaked out when I read this. She arrived at the place we are all dying to arrive at. Of course Ian has a lot more going on, but reading this, as reading any stories like this does, continues my hope.
Since I lost the recording of Dr. Hedayat's conversation, I sent him my notes to make sure I understood what he was saying. He was good enough to send me back an outline of it all. I'm pasting it below so I can keep it in my notes of Ian's journey. We have added his suggestions to our routine and will slowly take out others when and if we feel we are ready. I like to make one change at a time to try to better understand what's actually making a difference.
------- notes from the meeting with Dr. Hedayat ----------
AUTONOMIC NERVOUS SYSTEM (ANS)
This is the part of the nervous system that controls functions that you don’t control consciously. It has two general parts: Parasympathetic and Sympathetic. The sympathetic system has two parts as well.
Signs of an over-active system: being hyperalert, skin turns red easily, constipation, thick
secretions, muscle tension
o Beta-Sympathetic (“Beta”): Adrenaline is the actual chemical that equals beta. Signs of
an over-active system: hyperactive, fussy, strong gag reflex, strong cough, feeling warm all over, flushed cheeks, bursts of activity, waking up frequently in the middle of the night.
All aspects of Ian’s ANS are over-active. I believe that he is fundamentally parasympathetic with an over-reactive sympathetic system due to the intra-uterine events. What this means is that lowering the over-active sympathetic nervous system will be more instrumental in restoring balance to his ANS.
HORMONES AND ORGANS
aAn
Primary Gland and Organ
His key endocrine gland is the hypothalamus, which is the master hormone control. When this is imbalanced, all the other hormones are at risk of being out of balance as well.
The associated organs are the lungs. This can be a weak spot with frequent illnesses. Because of his strong Para, his lungs get congested easily. The heart depends on the lungs so when the lungs don’t work well, it can strain the heart as well.
People with a parasympathetic constitutional type tend to rely on their two energy centers to compensate and support: the adrenals and the thyroid.
Secondary Gland and Organ: Insufficient
The Adrenals are for fight and flight, first defense and bursts of activity (it makes cortisol and adrenaline). Ian’s cortisol levels were appropriate for his age, but his global adrenal activity was low.
This is the part of the nervous system that controls functions that you don’t control consciously. It has two general parts: Parasympathetic and Sympathetic. The sympathetic system has two parts as well.
-
Parasympathetic (“Para”)=“Rest and Digest” functions. Some signs of it being overactive are
excessive drooling, a sunken chest, soft nails, shyness, introversion, reflux, asthma, bronchiolitis,
etc.
-
Sympathetic: “Fight or Flight”
Signs of an over-active system: being hyperalert, skin turns red easily, constipation, thick
secretions, muscle tension
o Beta-Sympathetic (“Beta”): Adrenaline is the actual chemical that equals beta. Signs of
an over-active system: hyperactive, fussy, strong gag reflex, strong cough, feeling warm all over, flushed cheeks, bursts of activity, waking up frequently in the middle of the night.
All aspects of Ian’s ANS are over-active. I believe that he is fundamentally parasympathetic with an over-reactive sympathetic system due to the intra-uterine events. What this means is that lowering the over-active sympathetic nervous system will be more instrumental in restoring balance to his ANS.
HORMONES AND ORGANS
aAn
Primary Gland and Organ
His key endocrine gland is the hypothalamus, which is the master hormone control. When this is imbalanced, all the other hormones are at risk of being out of balance as well.
The associated organs are the lungs. This can be a weak spot with frequent illnesses. Because of his strong Para, his lungs get congested easily. The heart depends on the lungs so when the lungs don’t work well, it can strain the heart as well.
People with a parasympathetic constitutional type tend to rely on their two energy centers to compensate and support: the adrenals and the thyroid.
Secondary Gland and Organ: Insufficient
The Adrenals are for fight and flight, first defense and bursts of activity (it makes cortisol and adrenaline). Ian’s cortisol levels were appropriate for his age, but his global adrenal activity was low.
The liver and spleen are the associated organs and help manage energy storage (blood sugar—hence is
propensity to low blood sugar) and making the body strong and able to mobilize defenses against all
sorts of stressors.
Third Gland and Organ: Partially compensating
The thyroid is for long-term energy, endurance, oxygen uptake, and many other activities. Ian’s thyroid activity at the cellular level was slightly elevated and I felt that this may be an adaptive and appropriate support for his current condition.
Its associated organ is the kidney, which manages electrolytes and fluid. When it doesn’t work well, it can favor congestion in the tissues from accumulation of fluids. This appears to be the case given his recurrent lung issues.
MIND AND COGNITIVE STYLE
He has a very busy mind and can be overwhelmed by all the information coming in. The indexes of the biology of functions suggested this. This is coming from a few sources, the most important being elevated serotonin in the brain, which can augment a person’s sensitivity to environmental stimulation and heightened perception, which can be overwhelming. Often people will desire to “check out” or “zone out” to shut out some of the sensory input.
As a result, he's easily distracted. He appears to be sensitive to the “vibrations” if you will of other people, and can be positively affected by people who are loving and positive, and adversely affected by people who are negative, addicted to drugs, depressed, angry, etc.
His mind is 5 steps ahead of his movements. He may be prone to easily becoming frustrated with care givers because he assumes that they already know exactly how he has imagined something in his head and how to help him execute it in that fashion. It's helpful to narrate what you are about to do and to give him 2 choices for everything, both of which are acceptable to you and safe for him!
There is a possibility that he is engaged in selective mutism because he is still shocked by the late intra- uterine stress and his NICU course and subsequent admissions for lung issues (being poked, prodded, sedated, isolated, etc.) I do believe that explicitly telling him how much you love him, how glad you are that he is here, how safe he is with you may encourage Ian to speak over time. I do not have a way to predict if and when he may speak.
Being repetitive in teaching him new tasks, breaking them down to their smallest steps will work with his current learning style. Part of the goal of treatment will be thus to slow down the rapidity of his mental activity. He's thinking hard but not smart as a result of too much information. Use a communication board to get him communication before speech.
APPETITE DISTURBANCE
I theorized that Ian may have a leptin disorder but this is speculative because I did not measure leptin levels. He has a ravenous appetite by report, but the findings on my blood tests were not in line with the “typical” reasons for a ravenous appetite, which is why I speculated that it may be something central— within the brain—like leptin.
DIET
With respect to his diet, he has an augmented need for purine proteins which build DNA and enzymes
Third Gland and Organ: Partially compensating
The thyroid is for long-term energy, endurance, oxygen uptake, and many other activities. Ian’s thyroid activity at the cellular level was slightly elevated and I felt that this may be an adaptive and appropriate support for his current condition.
Its associated organ is the kidney, which manages electrolytes and fluid. When it doesn’t work well, it can favor congestion in the tissues from accumulation of fluids. This appears to be the case given his recurrent lung issues.
MIND AND COGNITIVE STYLE
He has a very busy mind and can be overwhelmed by all the information coming in. The indexes of the biology of functions suggested this. This is coming from a few sources, the most important being elevated serotonin in the brain, which can augment a person’s sensitivity to environmental stimulation and heightened perception, which can be overwhelming. Often people will desire to “check out” or “zone out” to shut out some of the sensory input.
As a result, he's easily distracted. He appears to be sensitive to the “vibrations” if you will of other people, and can be positively affected by people who are loving and positive, and adversely affected by people who are negative, addicted to drugs, depressed, angry, etc.
His mind is 5 steps ahead of his movements. He may be prone to easily becoming frustrated with care givers because he assumes that they already know exactly how he has imagined something in his head and how to help him execute it in that fashion. It's helpful to narrate what you are about to do and to give him 2 choices for everything, both of which are acceptable to you and safe for him!
There is a possibility that he is engaged in selective mutism because he is still shocked by the late intra- uterine stress and his NICU course and subsequent admissions for lung issues (being poked, prodded, sedated, isolated, etc.) I do believe that explicitly telling him how much you love him, how glad you are that he is here, how safe he is with you may encourage Ian to speak over time. I do not have a way to predict if and when he may speak.
Being repetitive in teaching him new tasks, breaking them down to their smallest steps will work with his current learning style. Part of the goal of treatment will be thus to slow down the rapidity of his mental activity. He's thinking hard but not smart as a result of too much information. Use a communication board to get him communication before speech.
APPETITE DISTURBANCE
I theorized that Ian may have a leptin disorder but this is speculative because I did not measure leptin levels. He has a ravenous appetite by report, but the findings on my blood tests were not in line with the “typical” reasons for a ravenous appetite, which is why I speculated that it may be something central— within the brain—like leptin.
DIET
With respect to his diet, he has an augmented need for purine proteins which build DNA and enzymes
that help the body build at the cellular level. With this he will become more satiated with meals. I
printed out a guideline to the foods highest in purine proteins for your consideration.
On his general lab evaluation, Ian was noted to have both low white and red blood cell counts, which are two of three cell lines that arise from the bone marrow. The bone marrow is the essence of life thus this indicates some imbalances with the core foundation and maintenance of structure.
You expressed some confusion about conflicting recommendations from Dr. Collins and myself regarding Ian’s diet. The biology of functions indicates that there is need for a specific type of protein called “purine proteins”. Meats are a good source of this, but I believe I provided you with a list of vegetarian options as well. The foods you chose should be easy to digest. Wild game, grass fed buffalo and organ meats and bone broth are easy to digest meat products. True, what you would purchase at Von’s is not easy to digest. A diet rich in vegetables is very important and I support this. Adding to your current regimen with the list of foods I suggested is a good idea for a starting point. There are good and bad fats. The foods I mentioned: coconut oil, sardines and eggs all contain health fats. Excess weight may adversely affect the lungs, so be mindful of this.
GENERAL DIETARY SUGGESTIONS
1. PROTEINS
A SUMMARY OF TREATMENT
Mind blend #1: Tilia tomentosa GM, Ilex aquafolium GM, Passiflora incarnata MT, Crocus sativa MT, equal parts, 1.5 ml twice per day
Body blend #1: Abies pectinata GM, Juglans regia GM, Corylus Avella GM, Agrimonia eupeptora MT, equal parts + Thyme EO 1 ml, Marjoram EO 2 ml; DOSE 1.5 ml twice per day
Pneumassist 1 drop in nebulizer with 3 ml normal saline, or with the budesonide once daily before dinner
Aconitum 1M, 1 pellet monthly for each week in NICU
Aurum metallicum 6c 2 pellets three times per day, away from meals
On his general lab evaluation, Ian was noted to have both low white and red blood cell counts, which are two of three cell lines that arise from the bone marrow. The bone marrow is the essence of life thus this indicates some imbalances with the core foundation and maintenance of structure.
You expressed some confusion about conflicting recommendations from Dr. Collins and myself regarding Ian’s diet. The biology of functions indicates that there is need for a specific type of protein called “purine proteins”. Meats are a good source of this, but I believe I provided you with a list of vegetarian options as well. The foods you chose should be easy to digest. Wild game, grass fed buffalo and organ meats and bone broth are easy to digest meat products. True, what you would purchase at Von’s is not easy to digest. A diet rich in vegetables is very important and I support this. Adding to your current regimen with the list of foods I suggested is a good idea for a starting point. There are good and bad fats. The foods I mentioned: coconut oil, sardines and eggs all contain health fats. Excess weight may adversely affect the lungs, so be mindful of this.
GENERAL DIETARY SUGGESTIONS
1. PROTEINS
-
Feed him tins of sardines as they have huge amounts of DHA in them as well as calcium
-
If eating Salmon, choose Chinook as they have the lowest levels of Mercury
-
Try to add at least one high purine item to Ian's lunch and dinner
-
Have him eat lots of eggs, especially partially cooked, runny yolks
-
Have him eat an unlimited amount of red fruits
-
Honey as desired
-
Cook with olive oil or ghee
-
Feed him spoonfuls of straight coconut oil, as much as he wants
A SUMMARY OF TREATMENT
Mind blend #1: Tilia tomentosa GM, Ilex aquafolium GM, Passiflora incarnata MT, Crocus sativa MT, equal parts, 1.5 ml twice per day
Body blend #1: Abies pectinata GM, Juglans regia GM, Corylus Avella GM, Agrimonia eupeptora MT, equal parts + Thyme EO 1 ml, Marjoram EO 2 ml; DOSE 1.5 ml twice per day
Pneumassist 1 drop in nebulizer with 3 ml normal saline, or with the budesonide once daily before dinner
Aconitum 1M, 1 pellet monthly for each week in NICU
Aurum metallicum 6c 2 pellets three times per day, away from meals
MEDICAL CARE
I would like you to discontinue the lung treatments that Dr. Collins suggested. Please continue the Xopenex and Budesonide for now. I will assist you with this in time. I want you to add 1 drop of Pneum Assist to the Budesonide daily to increase the drainage of water and mucous from the lungs. I had strongly cautioned you that at first, there may be worsening congestion and coughing because of the accumulation of fluid, but that this would improve over time. I recommend that the Xopenex be used as needed during illness, and the Budesonide daily for now.
When Ian is sick you may give him the Olive Leaf and Silvercillian. In the future, I will make you a special tincture that is just for sick times.
CONCLUSIONS
From the endobiogenic perspective, knowledge is power. The more we know, the more we can do and the more precise our treatment can be for Ian, as opposed to saying “all children with a learning disorder MUST be on such and such diet or such and such treatment.” I want you to appreciate that the endobiogenic approach looks at imbalances long before there is a pathologic problem. That is why when we speak of liver or spleen issues, I am not suggesting that Ian has liver or spleen failure or risk of it. To the contrary, we speak of insufficiencies, which is a relative assessment of demand and fulfillment of demand by the body. We assess capability and potential for wellness, not just failure or damage of organs.
I would like you to discontinue the lung treatments that Dr. Collins suggested. Please continue the Xopenex and Budesonide for now. I will assist you with this in time. I want you to add 1 drop of Pneum Assist to the Budesonide daily to increase the drainage of water and mucous from the lungs. I had strongly cautioned you that at first, there may be worsening congestion and coughing because of the accumulation of fluid, but that this would improve over time. I recommend that the Xopenex be used as needed during illness, and the Budesonide daily for now.
When Ian is sick you may give him the Olive Leaf and Silvercillian. In the future, I will make you a special tincture that is just for sick times.
CONCLUSIONS
From the endobiogenic perspective, knowledge is power. The more we know, the more we can do and the more precise our treatment can be for Ian, as opposed to saying “all children with a learning disorder MUST be on such and such diet or such and such treatment.” I want you to appreciate that the endobiogenic approach looks at imbalances long before there is a pathologic problem. That is why when we speak of liver or spleen issues, I am not suggesting that Ian has liver or spleen failure or risk of it. To the contrary, we speak of insufficiencies, which is a relative assessment of demand and fulfillment of demand by the body. We assess capability and potential for wellness, not just failure or damage of organs.
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