A cold bug delays the MRI

I have no idea why now, and why this kind of small bug. Hopefully it will just pass quickly. But Ian ended up with a fever Saturday of 101.4. Ok, not super high. But then this morning he woke up with a bit of green in his nose, little congested and still a fever but a bit lower. So I cancelled the MRI, expecting it to get worse. They wouldn't take him in if he had any congestion anyway. They won't put him out like that. But then by the end of the day his fever was even less and no congestion. Go figure!

The whole week leading up to this procedure stresses me out. As it gets closer, I get more anxious. Not as seen from the rest of the world but inside. Anxious about the anesthesia, anxious about what they might find, about how many pokes it will take to get his IV started, about how he'll come out of the anesthesia, and of course, how our night will go staying over in the hospital, when we finally get a room ;-) So I go through this, as does most anyone with a big event upcoming, and then I have to shut it off and do it again.


And of course I'm always scrutinizing certain things he does before as well. Like how he's been laying his head down a lot at random times. He could just be getting tired holding his big noggin up but I'm always worried it's to do with his brain growth. And then I was checking the top of his tush out again and it seemed to be a bit off. They will scan his brain and his lower spine to make sure he doesn't have a tethered cord.

But there was a reason for the delay, I'm just not sure what it was. Let's hope the bug will be gone in the next day or so. That will be a record for this guy. I hope I'm not jinxing him by writing this. He's got his sleep study on Saturday. I'm really hoping he'll be well for that. It takes months to schedule these kinds of things. Hopefully they will be able to fit in his MRI in the next few weeks as well.

On another note, he's been living a somewhat "normal" life for a few weeks here. We have actually been to a "typical" Mommy and Me music class for a couple sessions. It's for 1-2 year olds and there are only 4 other children in the class. We've both enjoyed it. Of course I drench him in sanitizer all through the class. The other Moms must think I'm a freak but oh well.

And he had his first psuedo "play date" on Friday. My friend Jenny came over with her two kids. One who is 5 days older than Lila and the other who is about 17 months old. She's an amazing little girl and she and Ian seemed to connect in their own baby way. It was the first time I got to see how he does with sharing (besides with his sister of course). And he did well! They even shared snacks, which I usually would completely freak out about but it was so darn cute and they both seemed healthy at the time. Little did I know what was to come from Ian. Hopefully we didn't get her sick!

Of course when he is sick, we have to up the breathing treatments. We've made major progress where those are concerned. He's allowing me to strap the mask to his face! Not all the time. And if I leave the room, he'll rip it off. But it's a major start. Of course we have to have a signing video going. We just realized a few weeks ago that he will stay engaged with these wonderful signing videos. So we show them every day, hoping something is sinking in. There are no clear, consistent signs happening but, on occasion we will see one. I'll take it!

And finally, one of the things that gets me through this semi-crazed kind of life... my sweet babies and their love for each other. I posted on my Lila and Ian blog about a song she was singing to him on the way to preschool the other day. She sings to him quite often and the songs are always the same... all about loving him, how cute and sweet he is and how she will take care of him forever. It just about breaks my heart listening to it. She doesn't realize what she's saying... or maybe she does. Or maybe they will just be there for each other in the way me and my siblings are there for each other. We take each day as it comes but hope for a bright and happy future. Doesn't everyone :-)