We are home thank goodness! Thursday I was very nervous leave the hospital until I was speaking to a G.I. nurse and she reminded me that pushing on the toilet probably hurt his brain and his head because of the pressure. So now he’ll probably be more apt to do it I also have to make him laugh to get him to go in the toilet, which is an odd thing to talk to GI about. But he hasn’t been laughing much so that made it hard. So probably a combination of things. But now he’s doing it all in the toilet! And being himself. And even his hair, after I washed it, because it’s so long covers it pretty well. , he’s got a huge shaved part and a candycane shaped incision. I probably still will cover it with a Band-Aid or something goes out to school It’s very scary looking even to adults .
I have to thank everyone for all of the love, prayers and amazing messages that were sent last week! I really truly believe it makes a huge difference in my sweet boys life that he has so many people that love him and support him emotionally. I swear he has nine lives. I think that’s probably number five he just used up. So he’s got 4 more left. Let’s hope we save those until he’s in his much much older years.
We didn’t get to see Opthamology before we left and I just wanted to get us out of there so I figured I’d deal with it later. While I was asking to see them I guess they were trying to work out how they could see him and they were supposed to see him before he got discharged. Oh well that’s OK. So we went back yesterday. He informed us that the optic nerve is still swollen but we have to give it time to relieve the swelling. His vision is still goo in both eyes!. That’s awesome! But right now he’s seeing double if he is using both of his eyes. Which I could kind of tell. So we’ll just keep putting a patch over one side of his glasses like I’ve been doing. If one is covered he sees good. until he gets used using them both together again. Dr. Borchert told me that when he starts looking at me with his head tilted to the left, and out of his right eye, that means that we can take the patch off.
That man is such an amazing person and amazing doctor. I cannot say enough about how much we care about him. Ee will see when that happens and go from there. I’ll see him at again in another few weeks.
Neurosurgery called yesterday as well and they said he could go back to school whenever he feels up to it. So we will see how the weekend goes and maybe he’ll go back on Monday. Or maybe just depends on how he’s feeling. I will ask him as well. We know his friends miss him terribly. They sent the cutest card and videos, some of them even had their parents record personal videos of the such amazing. I cannot say enough about how wonderful his class is. We are so fortunate!
A really twisted thing I found when I got home which made me so sad. I saw a mouse in his room, and it was actually out the kitchen as well. I set the humane trap the first time I saw it. It’s the one that has the peanut butter in it so I put it there. And then when it closes you know that the mouse is in there and you can bring it down to the field and let it go. The sad thing was that I wasn’t here when he got stuck in there. And while the mouse was being tortured by starving to death, my little boy was also being tortured by all the crap that happening with him. But Ian got to come home and go back to himself. The mouse didn’t make it. I was so sad to see that really hit me hard. Sounds like a silly thing after going through so much just make me so sad.
So we will see how the next couple weeks goes. Hopefully everything goes great and we can just get back to his life again. If you’re reading this thank you so much for your thoughtfulness, for your love your support. My little boy wouldn’t be who he is today without you and everyone who sends him love, prayers, positive energy and well wishes. I thank you. My whole family thanks you 💕✨😊
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