Monday, October 10, 2016

Typing his site words

I have cross posted this on Facebook as well because it is so very important to share. Can you believe this is my surreal 6 year old, kindergartener son, going through his site word lists? He can read all 22 lists and now we are just having him type them on his label maker to see what we need to work on. Main issue is a very frustrating part of the English language, Homonyms ;)

I share this not to boast; Although to be honest, when he does this I am so in awe I almost have to pinch myself ;) But thank goodness we worked with him using AAC and typing. Otherwise we might not know how well his mind works. Unfortunately there are so many who haven't been given this opportunity as it is not easy to do.

When his Principal so sweetly said good morning to him today, he did not look at her or respond in any way. He usually does, but sometimes it's like this, no connection at all. Because his mind has taken him away, to his own world, far away from the moment at hand.

If you are reading this blog, you know why this is so important. This boy has been through it all and more. He's had such a rough beginning, it's hard to fathom he can still muster up a smile. But he most often happy. Between his M-cm, Bilateral Perisylvian PMG, Autism, etc. Of course he spent much of the first two years of his life in the hospital. And spends most of his afternoons in therapy.

All of the support we have found for him, and the work that we do daily has clearly made a difference for him thus far. I share this to give a bit of light to those who are in the midst of frustrating times with their children.

No child is the same. There are those with these diagnoses who are much higher functioning than Ian, and those who struggle so much more. No matter the level of function, there is so much our children can share with the world. It is our job to enable then to do that. And that job is not an easy one. Some days I find it difficult to keep my cool ... but moments like this make it all worth it.



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