Thursday we received the almost bullet proof box, which enclosed the growth hormone to begin with Ian. A huge box with tons of ice packs for this little thing the size of a tube of toothpaste. Silly really. The nurse will come Sunday to show us how to do the injections. Entering yet another realm of the medical field that I had no interest in at all. Crossing fingers and toes there are no negative side effects of this hormone. And that it is, as they say, less intrusive than the prick I do each morning to test his blood sugar.
Read on the M-cm board that a couple of children's bilateral overgrowth didn't really reveal itself until after the age of 4. I truly hope we are not in for another major change such as this but guess we'll deal with things as they come. As we always have.
Really hoping the growth hormone does not stimulate any overgrowth issues, especially with his brain. Almost like clockwork his huge head slowed growth after his 2nd birthday. Thank goodness. It's the same size as Mike's, and he's got a very large head. Lots of brains, as he says ;)
The plan is for them to take the dose slow and low. Keeping very good track of all of his numbers. We will be getting blood work every four months through the whole course, until puberty. Sad to think this is the last night he went to bed without a shot for the next 10 or so years. This boy has been through so much, and the story continues.
But looking at things now, he's in a remarkable place. So I can't complain. Just wish for some easy times for him. No meds, no shots, no therapy, just living.
I'll soon post a short clip I did at the beach. A place that he and Lila embrace in such a beautiful way. More beach time. A wish from one of my sisters for my birthday. Will keep that as a resolution for this new year. We will not go a month without the feel of the waves crashing against our skin.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment