Standing more often and stronger now. And off of Keppra :-)

I posted a pic of Ian standing quite a while ago. Since then, I've been working with him to stand more but he wasn't as interested. He also would tire quite quickly. Lately, I think he's a bit more eager to do so. He still needs assistance and doesn't try it on his own but I'm trying to get as many gadgets as possible to help him and give him reason to stand. It's tricky because most things for this purpose are made for kids much smaller than he is. I've found a couple things that might help. The PT also brought a bench like thing that we can put toys on but it still doesn't have a lip for him to pull up on. The one she brought that does is too short. We have a great wicker box for toys that is good but it's got metal posts to keep it together and they make me too nervous. I'll continue my quest. For now, we'll work with what we have and help as much as we can to build those little leg muscles.

I might need to add another doc to the list as well. When he does stand he tends to either curl his toes quite tightly or try to lift the balls of his feet. Not sure what that's about but might try a podiatrist to make sure all is right with his legs and feet.

Had a meeting with the neurologist who looked at his MRI and compared it to the last one when he was just 6 weeks. She concurred that the PMG was not as severe as it might have looked before. That's good news! But what she pointed out was that his brain bleed was able to be seen much clearer now and that it was quite deep. She was surprised that he's doing as well as he is considering the severity of it.

After we discussed it, I began thinking about when it happened. I believe it was after the move to Westwood. I just wonder if that caused it or if it would have happened anyway. I always thought I should have been moved to have him there. Anyway, what's past is past, I should just know to follow my instincts more directly in the future.

Other things she mentioned was in the neuro sleep study she didn't see any seizure activity, which is awesome! She took him off Keppra, which she said wasn't doing much at his low dose anyway. She said the two sides weren't completely in sync but I didn't really understand what that meant. His white matter seems a bit off, again which didn't totally make sense to me. She explained it all to me but it still didn't make sense. I recorded some of our conversation to share it with Mike. I think I'll have him come next time. Seems I get it more when there's two of us to hear and ask questions.