summary of conditions as discussed with Dr. Vladana Milisavljevic at UCLA

Here is the update from this morning.  Ian is with a great team.  His condition is well understood, but why he has the myriad of issues and how they are contributing to his primary issue, PPHN is a mystery.  We're trying to reach out to the Neonatology Medical Community for any doctors with similar case experience that may be able to lend some ideas.  Please pass along the following info if you know someone in Neonatology.

The following is a summary of conditions as discussed with Dr. Vladana Milisavljevic at UCLA.  This description was typed out by Mike Abercrombie (father) and will be distributed to other professionals who may have similar, or related, experiences treating patients with Ian's unique combination of challenges.

Ian Abercrombie Condition as of Monday 3/22 at 11:45am

1. Born Friday 3/19 at 11:10pm
2. Has PPHN
3. Large for gestational age
4. Born pre-term at 35 5/7 weeks
5. GBS positive mother
6. HSV positive mother, no lesions at time of delivery
7. Mother had chronic cough for 3 weeks before contractions and hospitalization
8. Mother was 21 days in hospital with pre-term labor
9. Prenatal diagnosis of aorta and pulmonary artery dilation, suspicion of connective tissue disorder (Marfan syndrome)
10. Severely depressed at birth with low apgar scores
11. Required intubation and chest compression in delivery room
12. Appearance of baby after birth suggestive of hydrops with significant ascites
13. Enlarged liver and spleen
14. Petechia on skin at birth
15. On chest x-ray, heart enlarged and lungs white out - Survanta given
16. Initial CBC with hi NRBC count and low platelets.
17. Initial BMP 4600
18. Currently on HFOV, NO, sildenafil (just started) and Hydricortisone, dopamine, dobutumine, milrone drips
19. IVIG given twice
20. Numerous transfusions of FFP, cryoprecipite, platelets and PRBC
21. On ampiciline, gentamicin, meropenem, acyclovir, azithromycin, amphothericin
22. Cardiology, ID and genetics involved
    

Currently, O2 sats 98-100, blood pressure 76/40, heart rate 153

If you have any thoughts or experience you feel would be helpful with Ian's case - please forward your contact information, and any suggestions you might have, to mike@mikeabercrombie.com  and Mike will pass it to Dr. Vladana Milisavljevic who will contact you if necessary. 


So far, there has been a lot of terrific feedback from some very wonderful doctors interested in helping. What we have been able to do is to look at that feedback and see that so far, everything anyone has suggested has already been tried or is already in place. While Mike & I are in no way experts, because we have been so informed by the team, we recognize many things that are being suggested and are able to save his medical team from having to answer these questions again. Thank you for contacting Mike, instead of Ian's medical team directly, as it allows the rest of the team to focus their energies directly on our little Ian.